Online registration is now open for Aubrey’s 5K!

    DIMONDALE, MICHIGAN   Online Registration if Here! Over 300 runners/walkers participated in the inaugural Aubrey’s Butterfly 5k Run/Walk last year to help find a cure for Epidermolysis Bullosa (EB), and we want to personally thank you for your participation and donations in helping us raise over $10,000 for Debra of America...
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It’s Rare Disease Day!

What is a Rare Disease? In the U.S., a rare disease is one that affects fewer than 200,000 people. This definition comes from the Orphan Drug Act of 1983 and is slightly different from the definition used in Europe. There are nearly 7,000 rare diseases affecting nearly 30 million Americans. In other words, as many as one in ten Americans are suffering from a rare disease. As you might know,...
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Mark Your Calendars!

This year’s race is scheduled for Sunday, October 21, 2012 in Dimondale, Michigan! We had tremendous success last year, bringing in more than 300 registrants and hundreds more spectators and volunteers! Aubrey’s Butterfly 5K  was able to raise over $10,000 for Debra of America, the organization that provides funding for Epidermolysis Bullosa (EB) research and family support...
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Dimondale is ready for inaugural Aubrey’s Butterfly 5k

Organizers and community partnering to find cure for rare genetic disease October 19, 2011 DIMONDALE, Mich. — With the inaugural Aubrey’s Butterfly 5K Walk/Run on Oct. 22, race organizers and the village of Dimondale are ready to find a cure for Epidermolysis Bullosa (EB). The run is being held in memory of Aubrey Joy Oberlin and to raise money for research for EB. Children born with EB are...
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Happy 1st Birthday, Aubrey Joy!

Aubrey Joy Oberlin was born on this day last year, October 6. A heartfelt day for her family and everyone that loved her or knew of her. A day to remember her short time here, but also a day to sit back and reflect on how much good that came out of her life and the huge impact her story continues to make every day. Were you impacted in some way? Let’s celebrate her birthday today by...
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Are YOU the one?

What if YOU were the one that led to the cure for Epidermolysis Bullosa, just by spreading awareness? Join us!
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